Dr. Pearson called yesterday morning with Nylas CT scan results. He said ALL her sinuses were infected bad. Her left side is worse than the right, but they are all really bad. She most definitely has chronic sinusitis which he said is quite rare in a child her age. He started her on a twice a day for 3 weeks course of Augmentin. If she gets better and stays better than we dont need to see him again, until/if it comes back. If it comes right back after we stop the antibiotics we have to come back right away.

He didnt get the actual scans, just a copy of the radiologists report, so he said he doesnt know why she has this. It could be an anatomical deformity causing a blockage or something else, but he wont know until he sees the actual scans. As of now he isnt making plans to take her tonsils and adenoids out, unless when he sees the scans it shows that they are enlarged or infected. This is great news, I didnt want to have her go through another surgery if we didnt have to.

Nyla has finally gained a little weight, she is up by 0.3 pounds from when she had her dental surgery on the 15th of March. More good news!!

Today was Nylas ENT appointment. He wants her to have a CT scan of her sinuses before taking her tonsils and adenoids out. Her CT scan is scheduled for Friday morning at 8:30 am; now lets just hope she holds still so she doesnt have to be sedated!!

Nyla had a lung x-ray when she seen the pulmonologist in January, and it came back normal. The ENT said that since her x-ray was normal he doesnt think she has CF or PCD, but if removing her tonsils and adenoids doesnt help, then we will look more into those 2 issues. She hadnt gained anything since we were there last. He is optimistic that this surgery will help with her growth, and I really hope he is right. She is so tiny.

So, for now we wait for the CT scan and results and he will schedule her surgery from there. Hopefully this will be the END of her issues.

Nylas episodes of 'mom I cant breathe' are coming more frequent and I have no idea why. She HATES nebulizer treatments, so when she comes and asks me for one I know she is uncomfortable. We are diligent about her preventative care but I feel terrible when she has these episodes. The breathing treatments work well so far; we havent had to take her to the hospital since January, so Im thankful for that.

Things are getting a bit better. Nyla is back down to her 'green zone' treatment, and her peak flows have been around 80% which is great. Last night just before midnight she came to me and told me she couldn't breathe and asked for a breathing treatment, so we did a nebulizer treatment which helped and she went right back to sleep. I hope it was just a one time thing for now, but I haven't checked her peak flows yet today. Her ENT appointment is on Tuesday and I'm really looking forward to getting this next surgery underway because I'm optimistic that this will be the answer to her chronic sinusitis and failure to thrive issues. One can hope anyway right??