We had a bit of a scare today. Nyla came up to me and told me she couldn't breathe, so I grabbed the pulse oximeter and took her oxygen sats. It was bouncing between 84 and 86 so I grabbed the nebulizer and gave her some albuterol. As the treatment went on I could hear her breathing easier. Her oxygen sats came back up to 96 after we did the treatment, so that was a relief. She doesnt look good today, her skin is very pale and her eyes look so dark. I just hope this isnt the start of another respiratory virus; she is scheduled to have her surgery on 10 days and I really dont want to have to put it off yet again. She needs to have this done so we can move on. She starts her preventative antibiotic tonight so her last dose will be the day before the surgery; hopefully this will clear her sinuses up long enough for the surgery.

The pulmonologist we seen in January mentioned testing her for 3 conditions if the asthma prevention plan he prescribed did not help. One was cystic fibrosis, one was a lung condition specific to bird poop (which is extremely rare) and the other was a condition called PCD. PCD is short for Primary Ciliary Dyskinesia. It is a term for inherited disorders of the structure and/or function of cilia. It has many of the same symptoms as CF, but PCD patients have a normal sweat chloride level. The treatment and prognosis for both CF and PCD are about the same. It is very unlikely that she has any of these conditions but it is something that we need to rule out because early treatment is so important. We hope and pray that she doesnt have any of this problems, and that the tonsil and adenoid surgery will end all this.